Wellstone Center News and Events

2024 Dystroglycanopathies Patient & Family Conference

Registration for the 2024 Iowa Wellstone Dystroglycanopathy Patient & Family Conference is open! 

Date: July 13, 2024 - July 14, 2024

Location: Hyatt Regency Coralville Hotel & Conference Center (300 E 9th St, Coralville, IA 52241)

Click here to register.

Important Information for the 2024 conference:

  • The conference will focus on in-person attendance, but we will also livestream the main sessions.  
  • Only the large sessions will be livestreamed (via Zoom), smaller breakout sessions will NOT be available virtually. 
  • There will be a supervised play area for children at the Hyatt during the conference sessions. 
  • Travel reimbursement is available to participants who schedule study exams. 
  • Indicate exam appointment preference in registration form - appointment times are first come, first serve!
  • Study exams can also be scheduled at other times during the year by contacting Carrie Stephan (contact info below).

Hyatt Hotel Information

  • The Hyatt is holding a room block for conference participants ($129/night).
  • To make your reservations, please click here.
  • If you need additional assistance with your reservation, please contact the Hyatt at 877-803-7534.
  • June 20, 2024Final date to book room at Hyatt group rate.

There are also other hotels near the conference venue: Homewood Suites, Staybridge Suites, Drury Inn & Suites, Quality Inn, Comfort Inn & Suites.

Questions about the conference? Contact Carrie Stephan via email at carrie-stephan@uiowa.edu or via phone at 319-356-2673.

A large group photo of all attendees of the 2023 Wellstone Conference
Patients, families, and staff gather for a group photo during the 2023 Dystroglycanopathies Patient & Family Conference

Latest News

bioRxiv Latest Findings

bioRxiv is free online repository for scientific pre-prints which have not yet been peer-viewed. Posting research findings as pre-prints makes the information available to the muscular dystrophy community as soon as possible. Here are the latest research findings from the Campbell Laboratory:

New Publications

The Iowa Wellstone MDSRC is excited to share the latest research from Dr. Kevin Campbell's laboratory: N-terminal domain on dystroglycan enables LARGE1 to extend matriglycan on α-dystroglycan and prevents muscular dystrophy, published in eLife.

Awards and Lectures

  • Dr. Steven Moore, Co-Director of the Iowa Wellstone MDSRC, was invited to give the 2022 Saul R. Korey Lectureship at the American Association of Neuropathologists (AANP) Annual Meeting. The Korey Lectureship was established in 1989 by Dr. Robert D. Terry, a pioneer in Alzheimer’s disease research, to honor Dr. Korey, the founder and first chair of the Department of Neurology at Albert Einstein College of Medicine. As described by Dr. Terry, the Korey Lectureship recognizes someone who has "been an active member of the Association...a working Neuropathologist...responsible for diagnostic work as well as teaching and research.” Or, as the AANP states, someone who has “done it all and done it well.” Dr. Moore's lecture was titled "Adventures in Muscular Dystrophy: the DGC, LAMA2, and Other Sticky Relationships." Dr. Moore was also awarded the AANP 2022 Award for Meritorious Contributions. Congratulations Dr. Moore!

  • Dr. Katherine Mathews, who leads the clinical research project at the Iowa MDSRC, received the second annual "Pioneer for LGMD2i" award from the CureLGMD2i committee. The award was announced at the CureLGMD2i's 11th annual casino event, a fundraising event held with a virtual component on October 2, 2021. Lacey Woods, the first annual "Pioneer for LGMD2i" award recipient, created a video to present the award to Dr. Mathews, who also accepted the honor through a video shown at the event. Congratulations Dr. Mathews!

Recent Publications

Basic Science Research

Basic science research in Project 1 investigates the cellular and molecular mechanisms that underlie the dystroglycanopathies to provide a scientific foundation for the development of diagnostic and therapeutic strategies, as well as approaches to monitoring the efficacy of potential therapies. 

Clinical Research

Data collected from Wellstone study patients in Project 2 is analyzed and published in order to inform researchers and clinicians about disease progression and improve patient care.

Diagnostics Research

Diagnostics research draws on the broad spectrum of skeletal muscle biopsies available in Core B to investigate and develop novel diagnostic testing procedures for muscular dystrophy and to expand the toolbox of evaluation techniques for muscle biopsies and cell cultures from dystroglycanopathy patients.

More Publications from Wellstone Center Investigators

Recent Invited Lectures and Talks by Wellstone Center Investigators

Dr. Kevin Campbell



  • Glycobiology Gordon Research Conference, Ventura, California
  • Baylor College of Medicine Child Neurology Grand Rounds, Houston, Texas
  • 7th International Workshop for Glycosylation Defects in Muscular Dystrophy, Charlotte, North Carolina
  • Wash U Compass Fireside Chat, St. Louis, Missouri, Virtual
  • Presidents Lecture Series at Sanford Burnham Prebys Medical Discovery Institute, La Jolla, California
  • Augusta University Lombard Kelly Lecture, Augusta, Georgia
  • Society of Glycobiology Annual Meeting, Big Island, Hawaii
  • University of Iowa Neurology Grand Rounds, Iowa City, Iowa


  • The 3rd ENMC Workshop on Dystroglycan and the Dystroglycanopathies, Hoofddorp, The Netherlands
  • Scripps Molecular Medicine Seminar, San Diego, California
  • International Conference on Muscle Wasting, Ascona, Switzerland
  • University of Iowa Neuromuscular-Neurogenetics Symposium, Iowa City, Iowa
  • University of Rochester Inaugural Paul LaCelle Lecture, Rochester, New York


  • Regeneron Seminar Series, Tarrytown, New York, Virtual
  • Albert Einstein College of Medicine, Cell Biology Outside Speaker Seminar Series, Bronx, New York, Virtual
  • San Diego Glycobiology Symposium, San Diego, California, Virtual
  • ASBMB Herbert Tabor Award Lecture, San Diego, California, Virtual (Voted one of the "Most Favorited" sessions and presentations, Experimental Biology 2021 conference)
  • Joint Glycobiology Meeting, Heidelberg, Germany, Virtual
  • Tamio Yamakawa Award Lecture, Osaka, Japan, Virtual

Dr. Katherine Mathews


  • Treat NMD Masterclass, Virtual
  • CureCMD Roundtable Presentation and Discussion, Virtual
  • MDA Clinical and Scientific Conference, Dallas, Texas
  • Parent Project Muscular Dystrophy Cardiac Workshop, New Orleans, Louisiana 
  • 7th International Workshop for Glycosylation Defects in Muscular Dystrophy, Charlotte, North Carolina
  • Treat NMD Conference, London, United Kingdom
  • Ottawa Neuromuscular Conference, Ottawa Canada
  • Neuromuscular Study Group Annual Meeting, Orlando, Florida
  • Solve FSHD Summit


  • FSHD Society, Virtual Webinar
  • Patient Focused Drug Development Meeting with the FDA, organized by Coalition to Cure Calpain 3, Kurt + Peter Foundation, LGMD2D Foundation, The SPEAK Foundation, Cure LGMD2i, and the McColl-Lockwood Laboratory for Muscular Dystrophy Research


  • MDA Engage Pediatric Neuromuscular Seminar for Patients and Families, Virtual
  • FSHD Masterclass, Virtual

Dr. Steven Moore


  • MDA Clinical and Scientific Conference, Dallas, Texas


  • 2021 Academy of Clinical Laboratory Physicians and Scientists (ACLPS) Meeting, Virtual