Registration for the 2026 Iowa Wellstone Dystroglycanopathy Patient & Family Conference is open!

Location: Hyatt Regency Hotel and Conference Center, 300 E 9^th St., Coralville, IA 52241
Date: June 12-13, 2026
Registration link: https://uiowa.qualtrics.com/jfe/form/SV_6wXW0T1VdiclPWC

Join us for Wellstone study updates, meet industry and advocacy representatives, connect with friends, listen to talks about Clinical Trials, Advocacy, Caregivers Session, Exercise with Muscular Dystrophy, Pilates for everyone, and Q&A session with Wellstone staff. 

Wrap up the day with Social Hour, Dinner, and Trivia! 

Important Information for the 2026 conference:

• The conference will focus on in-person attendance, but we will also livestream the main sessions. 
  • Only the large sessions will be livestreamed (via Zoom), smaller breakout sessions will NOT be available virtually.
• There will be a supervised play area for children during the conference sessions (9:00 AM-12:15 PM and 1:15 PM-4:15 PM).
• Travel reimbursement is available to participants who complete study exams.
  • Indicate exam appointment preference in registration form - appointment times are first come, first serve!
  • Study exams can also be scheduled at other times during the year by contacting Carrie Stephan (contact info below).

Link to reserve rooms at the Hyatt Regency: : https://www.hyatt.com/events/en-US/group-booking/IOWRC/G-WELL

• Make sure to book the rooms under the group code: G-WELL
• Hyatt King and Queen-Queen Rooms: $149/night
• The deadline to reserve a room at the Hyatt is MAY 20^th, 2026!
• 24-hour access to the fitness center
• Parking is available in the adjacent Iowa River Landing North Parking Ramp: $10/day
• Watermill Kitchen + Bar is open 6:30am-9pm (restaurant) & 11am-12am (bar)
• The Café coffee shop is open 6am – 11am, Monday-Sunday

Other Hotels near the area: 

• Comfort Inn & Suites- 214 9^th St Coralville, IA 52241 (0.7 miles away)
• Homewood Suites by Hilton Coralville- 921 E 2^nd Ave, Coralville, IA 52241 (0.4 miles away)
• Staybridge Suites Iowa City- Coralville- 801 E 2^nd Ave, Coralville, IA 52241 (0.4 miles away)
• Super 8 by Wyndham- 611 1^st Ave, Coralville, IA 52241 (0.7 miles away)
• Hampton Inn Iowa City/Coralville- 1200 First avenue, Coralville, IA 52241 (0.8 miles away)
• Quality Inn Coralville- 209 9^th St, Coralville, IA 52241 (0.6 miles away)
• Super 7 Motel- 810 1^st Ave, Coralville, IA 52241 (0.6 miles away)
• Heartland Inn- 87 2ns St, Coralville, IA 52241 (0.7 miles away)

Questions?
Contact: Carrie Stephan 
Carrie-stephan@uiowa.edu
319-356-2673
Contact: Paige Sinksen 
Paige-sinksen@uiowa.edu